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Getting the most from the NDIS

27th September 2019

When Sue was transferring to the NDIS, she was terrified about what that meant for her. Fast forward nine months later, and she has had the opportunity to receive services and achieve personal goals that she never thought possible.

Sue was frightened at the possibility that she might not get enough NDIS funding to meet her needs. Living with anxiety as a symptom of her MS, meant that she was feeling really overwhelmed by the whole process.

She reached out to her GP and an MS occupational therapist for some help. They each assessed what services she would need to live comfortably at home and achieve her goals, and prepared a report that Sue could take along to her planning meeting.

A few weeks after her planning meeting, she was excited to receive a letter with the details of the funding she had been approved for. But when she tried to make sense of the financial details, she still wasn’t sure what this really meant. Would it be enough? What could she use this money for? She had so many questions, and she grew more anxious.

She reached out to the MS Society for help, and was connected with Jarryd as her NDIS support coordinator. Sue says she was reluctant to use the funding because she didn’t know how, but Jarryd has given her options. He is now helping her to navigate the system to get the most out of her funding.

“I was feeling a little bit anxious, so when Jarryd came he was just fabulous. So responsive, so knowledgeable about it – and if he didn’t know he would find things out really quickly. My anxiety has lessened so much just knowing he’s there as a support and a guide. Because it’s quite a maze.”

Since working with Jarryd, Sue has been able to use her funding to access services and opportunities that weren’t possible before. She believes that physiotherapy and exercise is crucial to help manage her MS. Now with her NDIS funding, she is having an in-home carer trained by a physiotherapist, to take her through one-on-one exercises twice a week.

“It has been so beneficial. I can see the improvement in my strength and that helps me to stand. I’m in a wheelchair so it helps me be more confident with my transfers. So that’s really important,” Sue says.

She is also using her funding to have her dog trained as a companion dog, and now has a paid gardener come once a fortnight to help maintain her garden – she previously had to rely on volunteers. Sue says even something as small as having someone tend to her garden regularly has made her so much happier. Now she can go and sit in her garden and just enjoy it.

Not only has she had access to vital services and supports to help manage her MS symptoms, she was also able to access support to volunteer overseas. As a passionate volunteer for a local community organisation, Sue was desperate to go overseas and visit the men and women they help.

Something that she would never have considered she could do before was now possible, because her carer support funding meant she could access a carer to go overseas with her.

“So for me, what I thought was going to be awful, has turned into something really good. And not only is my body getting a bit stronger, my anxiety is lessened and I actually have had the opportunity to have a little bit of fun. Which I never thought would ever happen. It has been just wonderful,” Sue says.

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Getting the most from the NDIS