MS Nurses providing lifelong support

24th March 2021

Emotions vary when a person receives a diagnosis of MS. Feelings of shock, anxiety and uncertainty are common as people start to process the potential impact this diagnosis will have on the rest of their daily life, their families and their careers.

Many people come into the MS Society with pre-conceived ideas about how MS will affect them as they have known or heard of someone else with the condition. Support during this time is very important and counselling them through their greatest fears often helps to reduce these initial stressors.

From the very beginning, our MS Nurses play a critical role in providing support, reassurance and accurate education to people with a new diagnosis of MS. Our MS Nurses often see people who have just been told by their neurologist that they have MS and come to us directly for more information and support.

Thanks to the generosity of our supporters, we are able to help people get through this often very anxious time with information and education from experienced healthcare professionals. Short-term counselling is also offered for people who are experiencing feelings of loss and grief following a diagnosis and who may need extra support.

Kerry, a woman living with MS, says, “The MS Society provide a nursing option, which is invaluable to those of us with MS. There are times when you just need a little bit of advice on the phone and there are times that you actually need a lot more emotional support and help through what’s going on in your life at the time. And the MS nurses are always there for that support on the end of the phone.”

The unpredictability of MS can be a big challenge for many people. Unfortunately, there is no crystal ball that can determine if or when a person may have a relapse again, where symptoms can flare up for weeks or months, or how quickly MS may progress. Existing symptoms can also vary from day to day, so commitments like work, and even social events, can be challenging.

Invisible symptoms are a very common cause of frustration and concern as they are often misunderstood by others. Pins and needles, numbness or tingling can’t be seen by others but can significantly affect day-to-day tasks. For example, numbness can affect someone’s ability to accurately gauge how hot the water in the kitchen sink or shower is.

One of the most common and frustrating symptoms that people experience with MS is fatigue. This is very different from everyday fatigue and is extremely overwhelming in nature, making even the smallest tasks impossible.

A key role of the MS nurse is to assess a person’s symptoms at any stage of their condition and to provide the appropriate education and advice about how to manage and reduce their impact on everyday activities such as work, social activities and household tasks.

Thank you so much for helping our MS Nurses to walk beside those living with MS through every stage of their illness. The education, emotional support and guidance they are able to give empowers people to overcome challenges of MS and live as fully as possible.

You can learn more about our MS Nursing services by contacting our MS Assist team via our contact form or on 1800 812 311.

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MS Nurses providing lifelong support